Greater East Ohio Chapter Newsletter - Alzheimer's Association

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1 JANUARY-JUNE 2016 THE BRAINS BEHIND SAVING YOURS G R E AT E R E A S T O H I O A R E A C H A P T E R S E R V I N G 1 7 C O U N T I E S In This Issue: For people facing Alzheimers, every day is The Longest Day stems from an idea in 2011: Angela Geiger, the The Longest Day Alzheimers Association chief HISTORIC FUNDING strategy officer, was walking on INCREASE ANSWERS Interest-based team fundraiser returns the beach and thought about how CALL TO ACTION 2 the summer solstice was symbolic Monday, June 20, 2016 of the long journey that so many SYMPOSIUM FEATURES with Alzheimers disease must face. CAREGIVER DISCUSSION From this, she considered how the 3 Association might turn that day into a meaningful call to action for 2016 EDUCATION all affected. The Longest Day was PROGRAM CALENDAR 3 born. LOU BLANEY MEMORIAL On the summer solstice, the CLASSIC 4 longest day of the year, teams are asked to participate in a sunrise- 2015 WALK TO END to-sunset activity to honor those ALZHEIMERS OVERVIEW facing Alzheimers. At the same 6 time, teams are challenged to POLICY & ADVOCACY raise funds and awareness for the HIGHLIGHTS 8 Alzheimers Association. MEMORY CAF Nowadays, just about everybody EXPANDING 9 knows someone who either has Alzheimers or is caring for CAREGIVER SUPPORT somebody with the disease. The RESOURCES 10 Longest Day enables people to participate in a meaningful activity CAREGIVER SUPPORT while raising money to combat this GROUPS 12 insidious disease, continued on page 4 Alzheimers Association NON PROFIT Greater East Ohio Area Chapter US POSTAGE PAID 70 West Streetsboro St., Suite 201 AKRON OH Hudson, OH 44236 PERMIT NO 759 1.800.272.3900 alz.org/AkronCantonYoungstown Fighting Alzheimers from Sunrise to Sunset Funded in part by the State of Ohio through the Area Agency on Aging Region 9, 10a, 10b, and 11 inc. and the Ohio Department of Aging

2 Greater East Ohio Area Chapter Historic alzheimers funding increase signed thousands of organized advocates across the country who have worked into law, answering Alzheimers Association relentlessly to ensure their message Board of Trustees: was heard was necessary for this win call for action to be possible. Susan Steiger President Harry Johns, CEO of the National Elizabeth Kozenko brings total federal funding to Alzheimers Association, has said: Vice President nearly a billion dollars for this fiscal Those of us on the front lines of this yearmore than double that of fight to end Alzheimers know that Deborah Guillermo Treasurer five years ago when the Alzheimers we need to stay on the offensive. Association worked with Congress to Congress and the president should Attorney Jennifer Lile pass the National Alzheimers Project build on this progress and continue Secretary Act (NAPA.) to listen to the leading medical Board Members experts and provide them with the Laura Gronowski The Alzheimers Association has resources next year and beyond to Michelle Henry led researchers to document the prevent, slow and ultimately develop Carla Spears scientific needs and opportunities Attorney Marcus Wainwright a cure for Alzheimers disease. Dan Van Dussen that stand ready to be addressed immediately with additional funding, This public policy win, including the Chapter Staff: allowing this increased funding to be passage by both houses of Congress put to use as quickly as possible. and the presidents signature into Pam Schuellerman December was a historic month Executive Director law on December 18th, is a result for our Association and our cause. A recent report from the Alzheimers of the incredible commitment from Development Department Congressional leaders from both Association, based on an economic Lori McCleese you: our volunteers, advocates, parties and both houses of Congress model created by an independent Development Director donors and staff. It is a powerful announced that the 2016 federal research firm, projects that Medicare example of just how much we can Andrew DeFratis government funding bill would spending on people with Alzheimers accomplish together when using Communications Coordinator include a $350 million increase for disease will more than quadruple our voices to raise awareness and Alzheimers research, the largest in just over a generation to $589 Genevieve Bohnak concern about Alzheimers disease Alzheimers disease funding increase billion annually in 2050. This analysis Stephanie Mueller and its impact. Helen T. Paes in history. showed that a treatment delaying Community Development the onset of Alzheimers by just five Coordinators For too long our cause has lagged years would save Medicare $345 behind in funding, while other billion in the first 10 years alone. Bernadette Duffy Development Administrator causes such as cancer, heart disease Sincerely, and AIDS have secured funding Advanced awareness, increased Pam Schuellerman Marcy Schulman well into the billions. This increase concern, and the hundreds of Executive Director Signature Events Coordinator/ Grant Writer Finance Department Joan Sillasen, CPA Finance Director Sherry Tytko Chapter Relations Coordinator Program Department Liz Mulroy Program Director Karen Elliott, MA, LSW Jennifer Miller Family Service Coordinators Kaylene Way, MBA Education Coordinator Carolyn Lake Helpline Coordinator Office Locations: Akron Area Office 70 West Streetsboro St. Suite 201 Hudson, Ohio 44236 330-650-0552 Canton Office 408 9th St. SW Canton, Ohio 44707 330-966-7343 Chapter Area Youngstown Office 3695B Boardman-Canfield Rd. Serving 60,000 people with Suite 301 Canfield, Ohio 44406 Alzheimers disease 330-533-3300 Our chapter offers programs and services to 17 counties, Toll-free: 1.800.272.3900 including 60,000 people with Alzheimers disease and an additional 250,000 people who are affected through their Andrew DeFratis Editor role as caregivers. The Greater East Ohio area chapter serves the largest prevalence of people with Alzheimers disease in the state of Ohio. This newsletter is published two times per year by the Greater East Ohio The state of Ohio is served by seven different chapters of Alzheimers Association, a non-profit tax-exempt organization. Permission the Alzheimers Association. Nationally headquartered in to excerpt material from this Chicago, Illinois, the Association is represented across the newsletter is hereby granted to other country by 81 area chapters united through a common Alzheimers chapters for use in their mission. publications with proper credit to the Greater East Ohio Area Chapter. The programs and services of the Greater East Ohio area All material in this newsletter is offered as information to our readers. chapter are designed to assist families in meeting the The Alzheimers Association does challenges of Alzheimers disease, and to help improve the not warrant, endorse or recommend quality of life for all of those affected by this progressive and any provider, program or product. degenerative brain disease. The chapter consists of three offices in Hudson (serving Greater Akron), Canfield (serving Greater Youngstown), and Canton.

3 A L Z H E I M E R S A S S O C I AT I O N 3 Annual Beverly A. Chiron Educational Seeking volunteers of all ages and abilities Symposium will be held at Hartville Kitchen You can make it happen... a world without Alzheimer's disease. Day One welcomes Family a.m. to 4:30 p.m. and will focus on Our volunteers are passionate, inspired and the current trends in dementia care, want to make a difference in the fight against Caregivers, Day Two offers specific to healthcare professionals. Alzheimer's disease. Whether you can spare a Continuing Education to This event will provide attendees with few hours a week, or can make a more significant Professionals continuing education, breakfast, lunch time commitment, please consider becoming an and dessert. The cost to attend and Alzheimer's Association volunteer. The Alzheimers Association Greater receive continuing education is $99 East Ohio area chapter is set to host until June 1, and $109 after June 1. Join an Event Committee two educational events this June at the Our chapter holds 8 different Walk to End Hartville Kitchen in Stark County. The keynote speaker for both events Alzheimers in the fall, 2 Paint the Night Purple is Karen Stobbe, who will focus on Galas in the spring, The Longest Day in June, and each has its own committee The Family Caregiver Discussion communication-based strategies with a wide variety of roles for you to use your experience and local connections will be held Monday, June 6, from 6:30 for anyone caring for an individual to help ensure an events success. p.m. to 8:30 p.m., and will focus on with a cognitive impairment. Karen challenges that family caregivers of a combines her caregiving strategies Public Awareness & Education loved one with Alzheimers disease or with her passion and career in acting A cross 17 counties, there are countless speaking opportunities, community other dementia-related diseases face and improvisational theater. Her talks showcases, festivals and tabling events where the Alzheimers Association aims throughout their caregiving journey. will focus on ways to be creative and to have an active and visible presence. This event is exclusive to individuals engaging when communicating with who are not professionals in the field an individual with cognitive deficits. Caregiver Support Groups Facilitator of healthcare; refreshments will be T o a caregiver, knowing youre not alone can be a very difficult hurdle to provided. The cost to attend this event If you are interested in sponsoring overcome. Our chapter offers over 30 support groups that meet monthly to is $10. or attending either of the events, or encourage discussion, sharing and provide a supportive atmosphere. Groups are have any additional questions, contact coordinated by volunteer facilitators or co-facilitators. The annual education symposium will Kaylene Way, education coordinator, at follow on Tuesday, June 7, from 8:00 [email protected] or 1.800.272.3900. Administrative & Office Support J ust a few hours here and there to help with mailings, preparing team captain folders, counting T-shirts, assisting on the phones, or providing clerical support can make a difference. There are many more opportunities, and we encourage new ideas. We are also looking to have a list of interested volunteers that can be called upon as one- time volunteer needs come up. Contact us to see how we can connect you with a fulfilling role to support the mission and goal of the Alzheimers Association today by emailing Bernadette Duffy at [email protected] or calling 1.800.272.3900. Top: Alpha Kappa Alpha Sorority volunteers helping spread awareness of Alzheimer's disease and services at the Kilcawley Center at Youngstown State University in October. Left: There are many volunteer roles in the lead up to and at the Walk to End Alzheimers necessary to ensure a positive experience for our participants. The Basics: Memory Loss, Effective Communication 2016 Community Education Calendar Dementia and Alzheimer's Strategies Disease As people with Alzheimers disease The Alzheimers Association seeks to provide valuable awareness and Learn the basics of Alzheimers and and other dementias progress in their educational opportunities to the public and professionals across our how it may differ from other types of journey and the ability to use words is chapter area. Additional trainings are available online through our website. dementia or memory loss conditions. lost, families need new ways to connect. Additional topics covered include: risk Join us to explore how communication Know the 10 Signs: factors, stages, and working with medical takes place when someone has Healthy Habits for a Alzheimers, learn to decode the verbal Early Detection Matters professional for proper diagnosis and Healthier You treatments. and behavioral messages delivered by Learn about research in the areas of Alzheimers disease is not a normal part someone with dementia, and identify diet and nutrition, exercise, cognitive of aging. If you know someone affected strategies to help you connect and by Alzheimers disease or dementia, its January 6, 2016 (6:00 p.m.) activity, and social engagement, with communicate at each stage of the time to learn the facts. This program North Canton Medical Center hands-on tools to help incorporate these disease. provides information on detection, 6046 Whipple Ave NW, North Canton, recommendations into a plan for healthy causes and risk factors, stages of the OH 44720 aging. January 13, 2016 (6:00 p.m.) disease, treatment and more. RSVP: 330-363-8255 February 24, 2016 (6:00 p.m.) Silver Lake Country Club January 28, 2016 (2:00 p.m.) 1325 Graham Rd., Silver Lake, OH February 11, 2016 (2:00 p.m.) 8960 Wilcox Rd., Twinsburg, OH 44087 Carriage Inn of Cadiz 44224 2021 Wales Av NW, Massillon, OH RSVP: 216-262-6176 308 West Warren St., Cadiz, OH 43907 RSVP: 330-612-3027 RSVP: 740-391-3311 44646 January 26, 2016 (4:30 p.m.) February 9, 2016 (1:30 p.m.) RSVP: 330-363-8255 Living with Alzheimer's Elmcroft of Sagamore Hills Guernsey County Senior Center February 17, 2016 (6:00 p.m.) (For Caregivers) 997 West Aurora Rd., Sagamore Hills, 1022 Carlisle Ave. Cambridge, OH 8960 Wilcox Rd., Twinsburg, OH 44087 When someone is diagnosed with OH 44067 43725 RSVP: 216-262-6176 Alzheimers, friends and family have RSVP: 330-908-1166 March 2, 2016 (7:00 p.m.) April 18, 2016 (6:30 p.m.) many questions. What does the March 21, 2016 (2:00 p.m.) Hubbard Senior Center Brunswick Library, 3649 Center Rd., diagnosis mean? What kinds of plans Antonine Sister's Adult Day Center 220 W. Liberty St., Hubbard, OH 44425 Brunswick, OH 44212 need to be made? What resources are 2675 North Lipkey Rd., North Jackson, March 16, 2016 (6:00 p.m.) RSVP: 330-273-4150 available? This program will provide OH 44451 8960 Wilcox Dr., Twinsburg, OH 44087 July 21, 2016 (6:30 p.m.) answers to the questions that arise in April 12, 2016 (3:00 p.m.) RSVP: 216-262-6176 Pearlview Rehabilitation and Wellness the early, middle and late stages of the Townview Terrace, 200 Market St., June 23, 2016 (2:00 p.m.) Center, 4426 Homestead Dr., disease. Wooster, OH 44691 Gables Care Center Brunswick, OH 44212 RSVP: 234-249-0062 351 Lahm Dr., Hopedale, OH 43976 RSVP: 330-225-9121 March 9, 2016 (6:00 p.m.) RSVP: 740-391-3311 8960 Wilcox Dr., Twinsburg, OH 44087 July 14, 2016 (6:00 p.m.) Driving Under the Influence RSVP: 216-262-6176 West View Healthy Living of Dementia 1715 Mechanicsburg Rd., Wooster, When and how to approach the subject OH 44691 of driving can be difficult with older RSVP: 330-264-8904 adults. This presentation covers the July 18, 2016 (2:00 p.m.) signs and symptoms of dementia, the Please RSVP to the hosting facility to confirm additional details. Antonine Sister's Adult Day Center working memory of the older driver, 2675 North Lipkey Rd., North Jackson, cognitive decline and driving, and steps Education programs are added throughout the year, find more at OH 44451 to peaceful resolution. alz.org/akroncantonyoungstown or contact Carolyn Lake, July 28, 2016 (2:00 p.m.) 1.800.272.3900 to plan a program for your group or facility. Carriage Inn of Steubenville February 29, 2016 (6:30 p.m.) 3102 St. Charles Dr. Steubenville, OH Green Branch Library 43952, RSVP: 740-391-3311 4046 Massillon Rd., Green, OH 44685

4 4 A L Z H E I M E R S A S S O C I AT I O N 2016 Paint the Night Purple prepares to Dazzle Our Paint the Night Purple benefit dinner and auction returns to both the Akron The 5th Annual Lou Blaney Memorial Classic and Youngstown areas this April, for elegant evenings of fine dining, music, and entertainment with live and silent auctions. Building on the success of years past, benefits the Alzheimers Association each gala is increasingly recognized as a must-attend evening in their respective Helen Paes, Community Development Coordinator communities. The Blaney Family of Hartford presented a contribution of $5,000 to the Paint the Night Purple raises funds to support the programs, services, advocacy Alzheimers Association for its Trumbull County Walk to End Alzheimers that took and research of the Alzheimers Association. Each year, the Association honors a place on Saturday, September 26, 2015. member of the community for their support of the Association and its mission. Planning committees for both are seeking interested committee volunteers, The contribution represented the proceeds from the 5th Annual Lou Blaney potential sponsors, and auction item donations. If you would like to participate Memorial Classic at Sharon Speedway on July 11. It was the largest amount raised in planning the event, please reach out to your galas community development from the Classic since its establishment. The day-long event featured a variety of coordinator. activities including a cornhole tournament, ball throwing contests, a dunk tank, frisbee competition and a live auction featuring one-of-a kind racing items. The Youngstown Update finale for the day was the first-time All Star Circuit of Champions Sprint Car event. Saturday, April 16, 2016 Lou and Kate Blaneys sons, Dave and Dale Blaney, who have had long careers racing in NASCAR, were also on hand to compete in the Memorial Classic. Returning to The Lake Club on the shores of Lake Evan, this years Paint the Night Purple promises engaging entertainment, with several impressive auction items The Memorial Classic is named in memory of Lou Blaney, a legendary sprint car already lined up. Start shopping for your gorgeous purple attire today! racer and Hall of Fame member, for his lifetime achievements in the field. Lou was diagnosed with Alzheimers and died from the disease in 2009. To honor his For information on attending, sponsoring or getting involved, contact Helen Paes, memory the Blaney Family, with the support of friends and those who followed community development coordinator, at [email protected] or 330.533.3300. Lous racing career, established the special event five years ago. Kate Blaney, Lous wife, has advanced the mission of the Alzheimers Association as an advocate and Hudson Update was honored at an Alzheimers gala in 2012. She continues to volunteer for the Saturday, April 30, 2016 Greater East Ohio area chapter, and serves on the planning committee for the 2016 Trumbull County Walk to End Alzheimers. Also returning to its successful venue from 2015, this years Paint the Night Purple at Lake Forest Country Club in Hudson promises to impress with optimized For more information on the Lou Blaney Memorial Classic, and other events in layout and momentous experiences to bid on. Come ready for the auction youll Trumbull, Mahoning and Columbiana counties contact Helen Paes, community be talking about for months to come! development coordinator, at [email protected] or 330.533.3300. For information on attending, sponsoring or getting involved, contact Stephanie Mueller, community development coordinator, at [email protected] or 330.650.0552. The Longest Day continued from cover says Marcy Schulman, the Alzheimers Association Greater East Ohio area chapters signature events coordinator. In its inaugural year, Longest Day teams were encouraged to complete endurance activities. Teams ran, biked and hiked throughout the United States. By the second year of The Longest Day, teams had begun to create days an answer. Shes already planning that involved other interests, many her strategy for 2016 involving a wine choosing an activity representing tasting: Im doing my best to take the a friend or family member living hatred I feel toward this disease and with the disease or a caregiver. turn it into something useful. International teams also joined the Bobbis mother passed away from event, participating from Canada, Italy, Alzheimers in 2014. Bobbis father Germany and more. had previously lost his two sisters to Alzheimers, and has been diagnosed We all know the Walk to End with the disease as well. Support the Alzheimers Association Alzheimers. This isnt that. Marcy explains. Take what you love or I will raise money for research, I will when you shop Amazon what youre passionate about; if you sell cookies, I will participate in walks, could do something for a whole day and I will speak loudly to anyone that AmazonSmile is a simple way for online shoppers to support the what would you do? Swim, golf, will listen about what a horrible thing Alzheimers Association when you use Amazon, at no cost to you. hold a movie marathon, a Monopoly this disease is. Go to smile.amazon.com and enter: Alzheimer's Association tournament, a wine tasting... the Greater East Ohio Area Chapter as your preferred cause. options are endless. Based on your To learn more and to register for interest, you can work with Marcy The Longest Day, visit alz.org/ The same selection and prices, but Amazon will donate a portion at the Association to develop a thelongestday. The early bird of the purchase price. fundraising strategy. registration fee for those who register before February 29 is $15, which More details are available at: http://smile.amazon.com/ Bobbi Krannich led one of the includes a welcome kit complete Greater East Ohio area chapters with your Longest Day t-shirt. most successful teams in 2015, by Marcy Schulman can be reached at selling cookies and not taking no for [email protected] or 1.800.272.3900.

5 A L Z H E I M E R S A S S O C I AT I O N 5 F i n a n cials , G r a n ts & F o u n datio n s Foundations are valuable partners & supporters of the Alzheimers Associations mission Our Walk to End Alzheimers billboards were made possible through a grant by the Lehner Family Foundation. The 2016 Akron Walk to End Alzheimers is scheduled for Sunday, October 2. The Alzheimers Association Greater East The foundations we work with have been so generous and supportive. It is with their help that we are able to increase awareness of our services, programs and Ohio area chapter gratefully acknowledges our Walk to End Alzheimers. Foundations have also been integral in our goal to provide each interested participant in our family caregiver support group and thanks the following foundations for meetings with a copy of The 36-Hour Day: A Family Guide to Caring for People their recent support. Who Have Alzheimers Disease, Related Dementias, and Memory Loss. For more information on grants, foundations, and The 36-Hour Day, please Babcox Family Foundation contact Marcy Schulman at 1.800.272.3900 or [email protected] $10,500 The Colonel Robert G. Moreland Charitable Fund at Stark Community Foundation $5,659.80 Charles E. and Mabel M. Ritchie Memorial Foundation $3,000 The Lehner Family Foundation $2,500, for Walk to End Alzheimers billboards The Pastore Family Foundation $2,500 Florence Simon Beecher Foundation $2,000, for the 2015 Mahoning Valley Walk to End Alzheimers Interim Healthcare Fund of The Columbus Foundation $2,000 M.G. ONeil Foundation: $2,000 The Mifsud Family Foundation $2,000 The 36-Hour Day by Nancy L. Mace, MA, and Peter V. Rabins, MD, MPH, is considered the best guide of its kind for family and caregivers. Richard M. and Yvonne Hamlin Foundation $1,833, for on-site signage for the Walk to End Alzheimers The Fibus Family Foundation $1000, for the purchase of 100 copies of The 36-Hour Day; and $500, for the 2015 Trumbull County Walk to End Alzheimers Allocation of Expenses Albert W. and Edith V. Flowers Charitable Foundation Financial Information $1,000 We respect the right of our donors to know how their money Community Foundation of the Mahoning Valley is being spent to further the Alzheimer's Association mission. $1,000, for the purchase of 100 copies of The 36-Hour Day We are proud to report that the Association earns high marks from those agencies whose job it is to monitor the activities of Lloyd L. and Louise K. Smith Foundation nonprofit organizations. $1,000, for the 2015 Akron Walk to End Alzheimers The Alzheimer's Association national organization meets or W. Paul Mills and Thora J. Mills Memorial Foundation exceeds relevant watchdog standards in its allocation of donor $1,000 dollars. According to the BBB Wise Giving Alliance, nonprofit organizations should spend at least 65 percent of its total Laura R. and Lucian Q. Moffitt Foundation expenses on program activities, with remaining funds going to $500, for the 2015 Akron Walk to End Alzheimers administrative and fundraising expenses. The Portage Foundation $500, for the purchase of 50 copies of The 36-Hour Day The national Alzheimer's Association organization continues to meet and exceed these minimum standards with 78 percent Schwebel Family Foundation of our total annual expenses going to care, support, research, $500 awareness and advocacy activities. Learn more or find additional financial documents at: www.alz.org/. The Vana Family Foundation $500

6 6 A L Z H E I M E R S A S S O C I AT I O N W alk to E n d A l z heime r ' s 2015 Walk to End Alzheimers Overview 2015 Akron Walk largest grossing event in chapter history Held annually in more than 600 communities nationwide, the Alzheimer's Association Walk to End Alzheimers is the worlds largest event to raise awareness and funds for Alzheimers care, support and research. Calling on participants of all ages and abilities to reclaim the future for millions, we are continually humbled and impressed by the huge show of support and passion from the communities and families within the Greater East Ohio chapter area. Trumbull County Walk (Warren) We had a gorgeous day for the Our 2015 Walk season saw over 4,600 participants on 464 teams that raised a Trumbull County Walk to End Alzheimers in Warren, Ohio, one of total of over $520,000. our completely outdoor Walks. We had great teams of volunteers and supporters to make the day a success. We, the Alzheimers Association staff, want to thank all the Thank you for everyone who came out! volunteers, committee members and sponsors that put in their time, Total Teams: 36 effort and resources to make our Walk season a huge success. Total Raised: $33,954 Total Participants: 257 This walk would like to thank and show appreciation to the following sponsors: Gold Sponsors Mercy Health Foundation R.L. Lipton Distributing Company Saber Healthcare United Healthcare VFW Post 1090 Silver Sponsors Comfort Keepers Windsor House Akron Walk Our 2015 Akron Walk was one for the record books: always the largest Walk in our chapter area, over 1,500 participants joined us at The University of Akron Stile Athletics Field House for what would become the largest grossing event in our chapters history. T op Family Team, Akron: It was a battle to the top between GEO Squad ($15,110) and Team HUGS ($10,612)! Total Teams: 139 Total Raised: $184,275 Walk Participants: 1,595 Thanks to The Shelley Company for emblazoning their cement truck with our contact information, to raise awareness of Alzheimers disease. Medina County Walk This walk would like to thank and show With ceremonies held in the stunning appreciation to the following sponsors: Medina High School, this years Platinum Sponsors Muskingum County Walk Tuscarawas County Walk (Dover/ Walk featured a new 2.5 mile route Crossroads Hospice Charitable (Zanesville) New Philadelphia) through the beautiful Forest Meadows Foundation Thank you to all of our supporters, Held at J.I.M.s Place on Sept. 19, 2015, neighborhood. We are grateful to Danbury Senior Living volunteers and participants who came the Tusc Walk kept an energetic the Medina County community who Four Corner Promotions out to Ohio University Zanesville atmosphere with fun activities for has continued to support this event Maplewood Senior Living campus on Saturday, Sept. 12, 2015, participants (like a photobooth,) and through fundraising and volunteering U.S. Bank for our first Walk to End Alzheimers of a new route through downtown that each year, allowing us to increase Gold Sponsor the season in the Greater East Ohio proved popular. It was an inspirational funds raised from 2014. 95.5 The Fish chapter area. We hope to see you morning for all who participated! Total Teams: 45 The Atrium at Anna Maria again in 2016! Total Teams: 30 Total Raised: $61,256 The Arbors at Stow, Fairlawn and Total Teams: 28 Total Raised: $31,678 Total Participants: 519 Streetsboro Total Raised: $26,133 Total Participants: 261 T op Rookie National Team: Arden Courts of Bath Total Participants: 180 Armbruster Moving and Storage Interim Healthcare This walk would like to thank and show (part of UniGroup) over $3,300! Saber Healthcare Group This walk would like to thank and show appreciation to the following sponsors: Silver Sponsor appreciation to the following sponsors: Gold Sponsors This walk would like to thank and show Daniel P. Seink Co., Ltd. Platinum Sponsor Country Club Retirement Campus at appreciation to the following sponsors: Elmcroft of Sagamore Hills Meridian at Cambridge Dover Platinum Sponsors The Gables Senior Assisted Living Gold Sponsors Crossroads Hospice Charitable Buckeye Health Plan Gardens of Western Reserve Hospice Clay Gardens Place Foundation Crossroads Hospice Charitable Heather Knoll Nursing and Zandex Healthcare Medi-Wise Pharmacy Foundation Rehabilitation Center Silver Sponsors New Dawn Healthcare Western Reserve Masonic Community Homewatch CareGivers Genesis Healthcare System Schoenbrunn Healthcare Gold Sponsors Kabb: An Elder Law and Care Firm The Oaks at Northpointe Sunnyslope Skilled Nursing Care and Medina Meadows Neurology and Neuroscience Primrose Retirement Community Rehabilitation Medina Village Skilled Nursing and Associates Ten Lakes Center Rehabilitation Rockynol Warther Cutlery Silver Sponsors Simply EZ Home Delivered Meals Silver Sponsors Life Care Center of Medina University Park Nursing and Hennis Care Centre Marie Mirro Edmonds Co. L.P.A. Rehabilitation Center Simply EZ Home Delivered Meals Pearlview Care Center The Village at Saint Edward Trinity Hospital Twin City Westergard Inc. Volunteer Guardian Program

7 A L Z H E I M E R S A S S O C I AT I O N 7 Stark County Walk Platinum Sponsor Jackson High School provided a Buckeye Health Plan wonderful venue for our indoor Gold Sponsors 2016 Walk to End Alzheimers Calendar ceremonies (as well as some great Briarfield Health Care Center student volunteers!) The weather Guardian Elder Care proved perfect for our route across the Sweeney Chevrolet, Buick and GMC Held annually in more than 600 communities nationwide, the Alzheimer's street on the North Park trail, a path Vista Care Centers Association Walk to End Alzheimers is the worlds largest event to raise familiar to Walk veterans. Silver Sponsors awareness and funds for Alzheimers care, support and research. Walk Total Teams: 81 Comfort Keepers offers new experiences every year, so whether you are a returning team or Total Raised: $74,170 Copeland Oaks this is your first time, register at: alz.org/walk Total Participants: 755 Mercy Health Foundation C hapter Top Family Team: Talmer Bank and Trust Muskingum County Walk Team Tiger ($16,284)! Windsor House, Inc. Saturday, September 10 Ohio University - Zanesville Campus This walk would like to thank and show Wayne County Walk (Wooster) 1425 Newark Rd., Zanesville, OH 43701 appreciation to the following sponsors: On a brisk morning in October, the Platinum Sponsor Wooster community showed their Trumbull County Walk Danbury Woods support in the fight against Alzheimers Saturday, September 10 Gold Sponsors disease raising over $55,000. Whether Kent State University, Trumbull Krugliak, Wilkins, Griffiths & Dougherty you were able to join us and walk 4314 Mahoning Ave, Warren, OH 44483 Co., L.P.A. for yourself or a loved one, or your The Landing of Canton business provided a sponsorship or Tuscarawas County Walk Rose Lane Health and Rehabilitation one of our magnificent raffle baskets, Saturday, September 10 Silver Sponsor your support has made a difference in Strasburg-Franklin High School Direction Home providing necessary services to those 140 N Bodmer Ave, Strasburg, OH 44680 Hanover House Nursing and with Alzheimers disease and other Rehabilitation dementias, and their caregivers. Medina County Walk Heritage Villas Total Teams: 34 Saturday, September 17 The Inn at Whitewood Village Total Raised: $55,056 Medina Community Recreation Center Oakhill Manor Total Participants: 424 855 Weymouth Rd., Medina, OH 44256 This walk experienced the most Mahoning Valley Walk growth over last year! Stark County Walk (Youngstown) Saturday, September 24 Thank you to all of our wonderful This walk would like to thank and show Jackson High School guests, including our supporters, appreciation to the following sponsors: 7600 Fulton Rd. NW, Massillon, OH 44646 Youngstown State University President Gold Sponsors Jim Tressel, and Boxing Champion Crossroads Hospice Charitable Akron Walk Ray "Boom Boom" Mancini. A great Foundation Sunday, October 2 morning in support of our loved Danbury Woods The University of Akron Stile Athletics Field House ones, in the fight to end this horrible Majora Lane Center 289 S. Union St., Akron, OH 44325 disease. West View Healthy Living Total Teams: 71 Shady Lawn Health Care Community Wayne County Walk Total Raised: $55,248 Silver Sponsors Saturday, October 8 Total Participants: 656 Cleveland Clinic Wooster High School Home Helpers 515 Oldman Rd., Wooster, OH 44691 This walk would like to thank and show Smithville Western Care Center appreciation to the following sponsors: Mahoning Valley Walk Saturday, October 8 The Watson Tressel Training Site, Youngstown State University 651 Elm St., Youngstown, OH 44555 How can I help make Walk Better? Are you interested in taking a more active role in your local Walk to End Alzheimers? Each Walk is the result of collaboration between local businesses, organizations and families that serve on Walk Committees. The Walk committees gather volunteers, sponsorships, donations, and deal with local outreach and logistics. Whether you want to use your local connections to make Walk an even better experience, or want to contribute your time and effort, consider serving on your local Walk Committee. Contact Bernadette Duffy, development administrator, for additional details at 1.800.272.3900 or [email protected]

8 8 A L Z H E I M E R S A S S O C I AT I O N P olicy & A dvocacy Thanks to You, We are Making a Difference Public Policy & Advocacy Highlights of 2015 As 2015 comes to a close, it is At the Federal level, changes were important to acknowledge the seen as well. In July, the National accomplishments we have made Institute of Health (NIH) submitted together in public policy and their first annual professional budget recognize the impact our supporters to Congress on the resources needed have made. to find a treatment for Alzheimers disease by 2025 which revealed a need Throughout our Walk to End for an additional increase of $323 Alzheimers season, participants million for fiscal year 2017. were asked to show their support by asking their Senators to make the In December, Congress passed the National Alzheimers Plan a priority 2016 Appropriations Spending Budget and to increase funding for Alzheimers which included a historic increase of research. This support took the form $350 million dedicated to Alzheimers of advocacy cards, complete with a disease research. In total, this will sticker our advocates could proudly give the NIH nearly $1 billion to find a display at Walk. treatment for Alzheimers disease. Thanks to our supporters across the These changes have been seen Greater East Ohio chapter area, we because of advocates like you who were able to deliver nearly 1,700 cards have been willing to step up to the to U.S. Senator Sherrod Browns office plate and tell Congress that we need on Dec. 10, highlighting the popular to take action now! support for Alzheimers research funding. We should be proud of all the progress made in 2015, but there is still much At the State level, over 400 advocates to be done to see a world without Volunteer advocate Dave Carper from Hartville delivers nearly 1,700 attended the 17th Annual Memory Alzheimers disease. We are grateful advocacy cards to U.S. Senator Sherrod Browns office, accepted by Day, asking their legislators for for the hard work our advocates have Sarah Lowry, Northeast Ohio Regional Representative. an increase in the respite line- done this year, and hope you will join item funding they heard us, and our cause in 2016. responded by passing a budget with a substantial increase in funds that For more information on upcoming can be utilized for support services and ongoing advocacy opportunities, and programs for those affected please contact please contact Andrew Share Your Story at Memory Day 2016 by Alzheimers disease including DeFratis at [email protected] or caregivers. 1.800.272.3900. Advocates meet with legislators to put face to Alzheimers disease experience Join us in Columbus on April 20, 2016, as we gather with advocates from across Ohio to have our voices heard. Now in its 18th year, the Ohio Council of the Alzheimers Association hosts Memory Day to allow advocates to meet with their legislators and share their journey with Alzheimers disease. DAYS AGENDA Advocates will be greeted in the Ohio Capitol Atrium of the Statehouse with a complementary luncheon and a program that will include updates on both state and federal legislative priorities from the Alzheimers Association. The luncheons agenda will include presentations from various guest speakers, and awards will be presented to honor the efforts of champions who support our cause. Following the luncheon, advocates are divided into groups in preparation for scheduled visits with the legislative offices. Each group will have a briefed coordinator, informed on the issues at hand, who will make any asks to the legislator. While in these meetings, members of each group will be given the opportunity to share their story as they are comfortable to put a face to You Can Make an their experience with the disease. In preparation for these meetings, the Ohio Council will offer telephone training to all attendees to give them a Impact on Capitol Hill detailed overview of the day, and answer any questions. DOES THIS MAKE A The Alzheimers Association is now DIFFERENCE? working in a strategic partnership with the Alzheimers Impact Movement Absolutely! Last year Advocates (AIM) to make Alzheimers disease asked legislators for additional a priority on Capitol Hill. This funding in the Alzheimers partnership has already shown spectrum, united by the conviction respite line item funding of the landmark results through efforts that we must end Alzheimers disease budget and it was approved in Congress resulting in increased and this issue must be confronted now. with a substantial increase! funding for research and the passage You can help AIM by becoming a of legislation including the National member in support of their efforts. As If you are interested in Alzheimers Project Act and the a member you would have access to participating in Memory Day Alzheimers Accountability Act. But exclusive information regarding AIM 2016, please contact Andrew there is still more work to be done. efforts and be a part of bringing an DeFratis at [email protected] Alzheimers agenda to Congress. or 1.800.272.3900. There is no AIM is a nonpartisan, nonprofit, 501(c) fee to participate, and effort (4) advocacy organization working to Register as an AIM member or find will be made to coordinate advance the legislative priorities of the out more information on their website transportation if needed. Alzheimers Association. Supporters at www.alzimpact.org or email of AIM come from across the political [email protected]

9 A L Z H E I M E R S A S S O C I AT I O N 9 P r og r ams a n d S e r vices Early Stage Dementia Presented in collaboration with the Akron-Summit County Public Library, companionship, and learning. Currently, Memory Caf is being Program continues to Memory Caf offers individuals in the offered at the Ellet Branch Library in Our Memory Caf is made early stage of memory loss a relaxing Akron. In spring of 2016, a Memory possible through the support prove popular and comfortable way to build a Caf will be starting at the Portage of the Akron-Summit County Expanding to Portage social network and connect with like Lakes Branch Library. If you, a friend, Public Library, the personal individuals in their own community. or family member are interested in involvement and interest of Lakes in 2016 Memory Caf provides meaningful attending, call Karen Elliot, family the library staff, and the help social and educational activities service coordinator, to register at Learn to use a Wii remote. Discuss that promote social interaction, 1.800.272.3900. of community partners and the fashion, politics and music of the volunteers. 1960s with the experts. Learn about genealogy, astronomy, birding and the history of aviation with a side of coffee and snacks. This stimulating series wouldnt have trouble finding popularity among the general public, so its no surprise that the participants of the Memory Caf at Ellet Branch Library return time and again. Individuals experiencing memory loss, early-stage Alzheimers, or other dementia may show changes in behavior, cognition or daily routine. Much of their day can be spent compensating for the challenges the disease causes with speech or memory. These individuals may be nervous in social situations and due to difficulty understanding their challenges, family and friends can have a hard time finding activities to do together. This can lead to isolation, depression and lack of connection with those around them. Memory Caf solves these problems by providing a welcoming space for conversation, stimulating speakers and activities, and refreshments to be enjoyed with others going through similar experiences. Research Updates to Alzheimer's. Sleep disorders are common among people with the disease, but it was thought this was due to Alzheimers affecting areas of Evidence suggests disease may the brain responsible for regulating begin years before symptoms occur sleep. Researchers are now suggesting Sandy Halperin, a former Alzheimers the relationship may be more Association National Early-Stage complicated. Advisor, was likely around 35 years old when his brain began slowly Hormone therapy for prostate accumulating the plaques and tangles cancer may increase risk of Alzheimer's. By age 60, when Hormone therapy for prostate cancer Alzheimers & Brain Awareness Month Halperin started to lose words and may be connected to a man's risk forget his intentions, the disease was of developing Alzheimer's disease, Along with The Longest Day already advanced. Dr. Sanjay Gupta, a new study suggests. Researchers CNN chief medical correspondent, found that men who underwent Campaign Experienced Expansion suggests that thanks to recent advances that allow us to see the androgen deprivation therapy (ADT) and Growth In June for prostate cancer had nearly twice disease in the living brain, there is the risk of Alzheimer's when compared evidence of Alzheimer's in neural to prostate cancer patients who The Alzheimer's Association has designated the month of June as tissue 20 to 30 years before someone didn't receive hormone therapy. The Alzheimer's & Brain Awareness Month seeing it as an opportunity to may notice lapses in memory. scientists cautioned, however, that the create a greater awareness as well as international presence about the study results don't prove a causal link brain and Alzheimer's disease and other dementias. High stress may be connected to between ADT and risk of Alzheimer's memory problems disease just an association and There were many efforts initiated to accomplish this including asking New research says stress may be linked more research into a possible supporters to "go purple" by wearing our signature color as well as taking with mild cognitive impairment (MCI), connection is necessary. the purple pledge by filling out the pledge card with their name and a decline in memory and thinking skills address and reaching out to engage more advocates in the movement. that can be a prelude to Alzheimers Alzheimers disease researchers Reports indicate that the purple pledge was very successful and awareness disease. In the study of older adults, hopeful that treatments can save through social media experienced a huge increase from last year. feeling stressed was associated with lives, costs a 30 percent greater risk of cognitive Leading Alzheimer's researchers are Also important to note, The Longest Day fundraising event on June 20, impairment. Its not yet clear whether optimistic that treatments to slow or the summer solstice, was declared the most important day of Alzheimers the stress causes Alzheimer's, whether halt the symptoms of the disease may & Brain Awareness Month. Individuals were asked to be involved in some the decline into Alzheimer's is what be on the horizon. The direct cost to tangible effort and in doing so, donate funds with a mission-focused way. causes the high levels of stress or if the U.S. economy of caring for people both issues are involved. with Alzheimer's is a staggering Whatever project that chapter supporters decided to do for The Longest $226 billion, with half being borne Day, we express our gratitude to all and look forward to even more Lack of deep sleep may play a by Medicare. Delaying the onset of exciting results next year. part in Alzheimers disease the disease by just five years could Evidence is growing that a lack of significantly decrease Medicare sleep may leave the brain vulnerable spending.

10 1 0 A L Z H E I M E R S A S S O C I AT I O N C a r egive r S u ppo r t r eso u r ces Connecting Alzheimers caregivers Reducing stress can help those caring for with services someone with Alzheimers Jen Miller, Family Service Coordinator Tips to manage caregiver stress Alzheimer's disease caregivers frequently report experiencing high levels of stress. It can be overwhelming to take care of a loved one with Alzheimer's or other dementia, but too much stress can be harmful to both of you. Our resources can help you avoid burnout. Know what resources are available. Adult day programs, in-home assistance, visiting nurses and meal delivery are just some of the services that can help you manage daily tasks. If you have access to a computer, the Alzheimers Association provides an online Community Resource Finder on our website, or you can contact the Alzheimer's Association Greater East Ohio area chapter for assistance in finding care resources in your community. Alzheimers Navigator, our free online tool, can also help evaluate your needs, identify action steps and connect with local programs and services. Get help. Trying to do everything by yourself will leave you exhausted. Seek the support of family, friends and caregivers going through similar experiences. Tell others exactly what they can do to help. The Alzheimer's Association 24/7 Helpline (800.272.3900), online message boards and local support groups are good sources of comfort and reassurance. Use relaxation techniques. There are several simple relaxation techniques that can help relieve stress. Try more than one to find which works best for you. Techniques include: Visualization (mentally picturing a place or situation that is peaceful and calm) Meditation (which can be as simple as dedicating 15 minutes a day to letting go of all stressful thoughts) Breathing exercises (slowing your breathing and focusing on taking deep breaths) Progressive muscle relaxation (tightening and then relaxing each muscle group, starting at one end of your body and working your way to the other end) Get moving. It is commonly known that a dementia condition is unique in the way it affects Physical activity in any form can help reduce stress and improve overall the entire family and community surrounding the person experiencing the well-being. Even 10 minutes of exercise a day can help. Take a walk. symptoms. There are ripple effects as one person with Alzheimers starts on a path Do an activity you love, such as gardening or dancing. of progressively losing their independence with living tasks and their ability to connect to others. Make time for yourself. As a caregiver, it's hard to find time for yourself, but staying connected to friends, One of the consequences of a dementia diagnosis is that the caregiver needs family and activities that you love is important for your well-being. Even if it's only to become more comfortable in the role of decision maker, organizer and 30 minutes a week, carve out a pocket of time just for yourself. communicator on behalf of the person with dementia. This may involve the caregiver assuming responsibility for finances, administration of medication, Become an educated caregiver. safety, and personal care. Often, the caregiver transition is gradual and initiates As the disease progresses, new caregiving skills may be necessary. The some grieving as the caregiver considers the change in relationship to the person Alzheimer's Association offers programs to help you better understand and cope with dementia. with the behaviors and personality changes that often accompany Alzheimer's. The Alzheimers Association offers free programs designed to help caregivers in Take care of yourself. these circumstances and others. Programs such as a 24/7 HelpLine (1-800-272- Visit your doctor regularly. Watch your diet, exercise and get plenty of rest. 3900) and arranging educational presentations to meet immediate and general Making sure that you stay healthy will help you be a better caregiver. needs. To address long-term planning and ongoing support, Care Consultation and caregiver support group meetings become critical to the family caregiver. Services offered at the Alzheimers Association are tied to evidence-based research and continue to receive positive feedback from people who use them. The Alzheimers Associations website, alz.org, also has countless resources and documents for caregivers, those with a diagnosis, and those looking to support a world without Alzheimers. 10 symptoms of caregiver stress Caregiver Stress Check 1. D enial about the disease and its effect on the person who has been If you are diagnosed with dementia, or caring for someone who has the diagnosis, diagnosed. I know Mom is going to get better. connect with the Alzheimers Association early and often at 1.800.272.3900. 2. A nger at the person with Alzheimer's, anger that no cure exists or anger that people don't understand what's happening. If he asks me that one more time I'll scream! 3. S ocial withdrawal from friends and activities that once brought pleasure. I don't care about getting together with the neighbors anymore. 4. A nxiety about the future. What happens when he needs more care than I can provide? 5. D epression that begins to break your spirit and affects your ability to cope. I don't care anymore. 6. E xhaustion that makes it nearly impossible to complete necessary daily tasks. I'm too tired for this. 7. S leeplessness caused by a never-ending list of concerns. What if she wanders out of the house or falls and hurts herself? Map Out a Plan to Approach Alzheimers 8. Irritability that leads to moodiness and triggers negative responses and actions. Leave me alone! There are many questions youll need to answer as you 9. L ack of concentration that makes it difficult to perform familiar tasks. plan for the future. Use Alzheimers Navigator our free I was so busy, I forgot we had an appointment. online tool to guide you as you map out your plan. 10. H ealth problems that begin to take a mental and physical toll. I can't remember the last time I felt good. Learn more: www.alzheimersnavigator.org If you experience any of these signs of stress on a regular basis, make time to talk to your doctor or connect with the Alzheimers Association.

11 A L Z H E I M E R S A S S O C I AT I O N 1 1 Contributions Have Been Made in Memory of the Following Individuals In Memory Of: Mildred "Millie" Honold Irene Reischman The Greater East Ohio Area Jayne Horton Sue Rhodes Chapter depends on friends in Nancy Houts John Riachy our community to help support Myra Abell Lenella Jacobs Eleanor Richardson Emil Adams Esther Kail Dorothy Rogus Chapter programs and services Idamay Aebi Tina Kasprzak David Roughley through donations, tributes, Roy Ahrens Helen Kastein Oliva Ruszin memorials, and bequests. Grace Archer Susie KeenAn Elizabeth "Betsy" Rydell Dallas Arny Bonnie Jean Kenworthy Charles "Bob" Samples Betty Becker Marvin Kieffaber Shirley Savage Helen Bennett John Allen King Ann Scali Mona Berletich Hazel Knapp Ms. Vonda Schaffner Memorial Funds: Bruce Bickart Gerald Blasco, Sr. Eugene Boettler Marie Bohl Arlo Knepper Martha Knight Walter Koenig Tillie Korbar Gertrude Schmidt Charles Richard Scott Jerry Scott Harriet Sene Maria Bologna Mr. & Mrs. Joseph Kreuz Clinton Shafer, Sr. Joyce Brady Vivian Kuhn Ruth Jane Shipsky Beverly A. Chiron Alzheimers Ms. Patricia Laps Donald Sholar Helen Buchanan Education Fund Mildred Buchanan Sharon Layton Charlene Sikora Eleanor Capalucci Ann Leach Mary E. Smith Duane Carder Kathryn Leatherman Betty Snavely In Memory of: Teresa Casey Nellie Lellio Don Snyder Steve Childress Joseph Gary Lewis Gaylia Jean Snyder John Stec Ola Jean Christner Rosemary Leyden Carol Stachler Lorraine Clark Tom Lindsey Mary Louise Stein Dora Clegg Lois Little Victoria Stotsbery Grace Clegg Sandra Loader Marilyn Studer Ethel Schwartz Rossen Gloria Clemens Jeanne Lutz David Stuffel Memorial Fund Margaret Cline Lester Macris Donald Sutyak Mae Arlene Ellison Cole Ruth Magoulick Michael Taray Peri Correlli Alfred Malatesta, Sr. Barb Taube In Memory of: Rebecca Jane Culbertson Steven Markusic John "Ron" Thomason Rosalea Cutlip Jim Martin Daisy Tomei Samuel Danco Margaret May Geraldine Turner Harvey Basch Herb Delaney Yolanda Mayor Ms. Debbie Vander Salvatore Pagano, DDS Gene Doyle Harold Mcabee Joan Vargo Richard Rosenthal Ann Dutchman Doris Mohler Loreta Verrocchi Elizabeth "Louise" Ellis Mildred Moyer Sophie Vitale James Ellsworth, Sr. Helen Newmiller Cornelia "Connie" Janice Evans Jack Nida Wagner Dorothy Farley Evelyn Nill Calvin Waite Fred Feit Theresa Ottogalli Olive Warren Mr. And Mrs. Ron Fritz Dorothy Parrish Irene Weber Kevin Golba James Parsons Leila "Lee" Werner Charles Goodwin Donna Patton Bonita Parker West Marianne Grandstaff Jane Patton Graciela Wilkof Memoriam Fund Virginia Graneto Robert Pavick Ally Willen Dorothy Gray Edward Pawlik, Sr. Ann Wilson What is a Memoriam Fund? Sylvia Greenspan Peggy Perrie PatriCia Woznicki Dorothy Grimm Cullen Pfendler Allen Wyman A Memoriam Fund is a special category of giving. Jean Gumas Edie Phelps Betty June Yeager It is created by an initial donation or cumulative Lawrence Hackett Randy Phillips Dorothy Zoltai contributions totaling $1,000 or more in memory Eugene Hamilton Rita Pinciotti of, or as a tribute to, and individual. Contributions may be made to an established Memoriam Fund, Beatrice Hapeman Jim Pochurek at any time, in recognition or support of an Elmer Hardy Beverly Polen individual event. Billie Harper George Porosky Donald Hart Donald Quimby How do I set up a Memoriam Fund in memory of a loved one? Gerald Hart Kenneth Ray Ms. Mildred Heislman Jane Redmond Call the office at 1-800-272-3900 and our staff will John Hillery Ms. Madge Regallis help set up the fund. Once established, memoriam funds will be listed in the newsletter whenever a current donation has been made.

12 JANUARY-JUNE 2016 Profile Caregiver Support Facilitator Community Resource Finder Cindy Burrell Association recognized that passion and asked Cindy to consider which provides adult day services, allowing caregivers respite while Green Support Group facilitating a caregiver support group. ensuring their loved one is cared for. Caregiver support groups encourage In addition to her work and volunteer a support network for caregivers to roles, she is an active swimmer and share their experiences and connect bicyclist, and loves spending time with with resources. Most importantly, she her grandchildren. could guide caregivers in realizing that no two experiences are exactly the The Alzheimers Association is greatly same, but they are not alone facing appreciative of the hard work Cindy their Alzheimers journey. Burrell has done, and the dedication she has shown to support caregivers The most valuable lesson Ive Eager to put her knowledge and through her role with the Green learned from being a support group experience to use helping others, Support Group. facilitator, is that you can never she accepted the position without have all of the answers. Like many hesitation. Cindy has been an Alzheimers Association volunteers incredible resource in helping How You Can Help Community Resource Finder and staff, Cindy Burrell has watched caregivers since, as well as being active The following support groups are is a new online search engine friends and loved ones battle the in planning and recruiting for the Stark in need of co-facilitators. Support offered by the Alzheimers disease. Shes witnessed the effect it County Walk to End Alzheimers. Groups give caregivers and families has on someones personal health, a place to turn to for information Association that enables a and the health of their relationships. Looking at her experiences as a about Alzheimers disease and related person with dementia and Having seen the devastating impact of facilitator and the people she has met dementias, and emotional support. Alzheimers disease again and again, through that role, she acknowledges Training is provided for interested their caregivers to locate she has dedicated most of her life to that in addition to her training, she applicants. For more information on community programs, services supporting Alzheimers patients and often learns more from the caregivers the role or to get involved, please and resources. their families. who attend, the ones who are battling contact Liz Mulroy at [email protected] the disease firsthand. When no two or 1.800.272.3900. Her personal and professional experiences are the same, sometimes Get connected at: experiences gave her invaluable the group discussion can lead to Canfield Massillon knowledge and compassion for everyone learning something new. Fairlawn Wooster www.communityresourcefinder. caregivers. In 2003, the Alzheimers Cindy currently works for a company Hubbard Youngstown org. HUBBARD RAVENNA Caregiver Support Group Monthly Meetings Hubbard Senior Center UH Portage Medical Center 220 W. Liberty St. 6847 North Chestnut St., Rm. A First time attendees: Please contact the HelpLine at 1-800-272-3900 1st Wednesday, 7:00 p.m. 1st Tuesday, 6:30 p.m. to confirm the date, time and location. ST. CLAIRSVILLE HUDSON St. Marys Church ALLIANCE COSHOCTON St. Marys Catholic Church, Rm 104 212 W. Main St., Parrish Hall Rodman Public Library Health Services of Coshocton 340 North Main St. Basement 4th Tuesday, 1:00 p.m. 215 E. Broadway St. 230 S. 4th St 3rd Thursday, 7:00 p.m. Last Thursday, 2:00 p.m. Last Thursday, 4:00 p.m. STEUBENVILLE MASSILLON Eastern Gateway Community College BARBERTON CUYAHOGA FALLS Affinity Medical, Massillon Campus 4000 Sunset Blvd., Room 1506 Barberton Public Library First United Methodist Church 875 Eighth St NE 3rd Thursday, 6:00 p.m. 602 West Park Ave. 245 Portage Trail 1st Floor, Conference Room 1 2nd Tuesday, 6:00 p.m. TALLMADGE 1st Wednesday, 6:30 p.m. 1st Tuesday, 1:00 p.m. First Congregational Church MEDINA 85 Heritage Dr. BRUNSWICK DOVER Last Tuesday, 11:00 a.m. Medina Public Library Heimatland Party Center Union Hospital, Reeves Auditorium 210 S. Broadway St., Rm. 1907 WADSWORTH DAY 3511 Center Rd. 659 Boulevard (Bring a brown bag lunch!) Soprema Senior Center and Cafe 2nd Tuesday, 1:00 p.m. 3rd Tuesday, 7:00 p.m. 3rd Wednesday, 12:30 p.m. 617 School Dr. 1st Thursday, 1:00 p.m. CAMBRIDGE FAIRLAWN/AKRON MILLERSBURG Guernsey County Senior Center Fairlawn Lutheran Church North Side Baptist Church WARREN 1022 Carlisle Ave. 3415 W. Market, Akron 1207 Wooster Rd. Trumbull Memorial Hospital 2nd Tuesday, 1:30 p.m. 4th Thursday, 2:00 p.m. 3rd Monday, 6:00 p.m 1350 East Market St. Conference Room F CANFIELD GREEN MINERVA 3rd Wednesday, 10:00 a.m. Canfield United Methodist Church Green Branch Library Y.M.C.A. WOOSTER 27 South Broad St. 4046 Massillon Rd. 687 Lynwood Dr. Wooster United Methodist Church 4th Thursday, 1:30 p.m. Last Monday, 6:30 p.m. 1st Thursday, 6:30 p.m. 243 North Market St. 3rd Wednesday, 1:00 p.m. CANTON DAY (MENS) NORTH JACKSON Faith United Methodist Church West Side Bakery Antonine Sisters Adult Day Center YOUNGSTOWN 300 9th St. NW, North Canton 1840 TownPark Blvd. 2675 North Lipkey Rd. Northside Medical Center, Bldg. A 3rd Thursday, 1:00 p.m. 3rd Tuesday, 1:00 p.m. 3rd Monday, 2:00 p.m. 500 Gypsy Lane, Classroom A 1st Tuesday, 10:00 a.m./Classroom A ORRVILLE CANTON EVENING HOWLAND ZANESVILLE Trinity United Methodist Church Sirak Financial Building Howland United Methodist Church Trinity United Presbyterian Church 1556 Rex Dr. 4700 Dressler Rd. NW, Suite 200 730 Howland-Wilson Rd. NE 830 Military Rd. 4th Wednesday, 1:00 p.m. 4th Tuesday, 6:00 p.m. 2nd Tuesday, 7:00 p.m. 2nd Tuesday, 6:00 p.m

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